First slideshow: The world of e-patients
- Who is a good patient? (referring to I am a good patient, believe it or not; Alejandro R Jadad, Carlos A Rizo, Murray W Enkin; BMJ 2003;326:1293-1295 (14 June), doi:10.1136/bmj.326.7402.1293 )
- Types of patients: the powerful other; external controller, internal controller or google patient or brainsucker or googlers
- An e-patient is equipped, enabled, empowered, engaged, equal and expert.
- Examples (several stories) including maartensjourney.com, Kerri and many more including Jen:
- What do e-patients use? Websites (Web MD), blogs (fightpompe.com, sixuntilme.com); Second Life (Healthinfo Island), services (sugarstats.com or traineo.com)
- Community sites:
- Patientslikeme.com: Featuring the research they’re doing
- imedix.com: real-time chat
- dlife.com: biggest diabetic community
- What to do with medical charts and papers? Introduction to the world of personal health records (Google Health,Microsoft Healthvault).
- How does a community work? I posted a message on Twitter, Kerri replied to it and made a video message for the students.
Many thanks to e-Patient Dave deBronkart who also had his voice heard:
Other videos from e-patients:
- Statistics about how patients use the web (source is Pew Internet Project Survey)
- How to help e-patients as doctors (don’t use jargons, be patient, show credible sites focusing on medically reliable information)
- How to judge the quality of a medical website, step-by-step. Using Webicina, HONcode, HBCE.
Physicians of the 21st century must be qualified to meet the expectations of e-patients. They’re the new generation of patients.
Second slideshow: Doctors in social media
- What is social media?
- Traditional vs social media (pros and cons)
- I have an opinion and post it online, but others have their own opinions as well
- It becomes hard to find information and we need places/sites where information is collected and selected by other experts and collegues.
- How to find a collegue or get answer for a medical question? By using telephone, Google or Facebook? Certainly not…
- We need medical community sites (and crowdsourcing)
- Examples: Sermo.com, Nature Network and many more.
- Microblogging (Twitter and Friendfeed)
- Advantages of medical communities, disadvantages
- Privacy issues: can you communicate with patients online?
- Facebook stats and optimal privacy settings for doctors in Facebook
- General principle: Same rules apply for social media as for real life. If there are things you would never do offline, please do not do that online neither!
Without properly designed strategy, don’t even think about using social media in your practice.