Week 5: The world of e-patients and medical communities

First slideshow: The world of e-patients

  • Who is a good patient? (referring to I am a good patient, believe it or not; Alejandro R Jadad, Carlos A Rizo, Murray W Enkin; BMJ  2003;326:1293-1295 (14 June), doi:10.1136/bmj.326.7402.1293 )
  • Types of patients: the powerful other; external controller, internal controller or google patient or brainsucker or googlers
  • An e-patient is equipped, enabled, empowered, engaged, equal and expert.
  • Examples: maartensjourney.com and youtube.com/user/geriatric1927
  • What do e-patients use? Websites (Web MD), blogs (fightpompe.com, sixuntilme.com); Second Life (Healthinfo Island), services (sugarstats.com or traineo.com)
  • Community sites: Varoszoba.hu (Hungarian)
  • Patientslikeme.com: Featuring the research they’re doing
  • imedix.com: real-time chat
  • dlife.com: biggest diabetic community
  • butyoudontlooksick.com, iancommunity.org, mycarecommunity.org
  • What to do with medical charts and papers? Introduction to the world of personal helath records (Google Health).
  • How does a community work? I posted a message on Twitter, Kerri replied to it and made a video message for the students.
  • Statistics about how patients use the web (source is Pew Internet Project Survey)
  • Describing apomediation
  • How to help e-patients as doctors (don’t use jargons, be patient, show credible sites focusing on medically reliable information)

Take-home message:

Physicians of the 21st century must be qualified to meet the expectations of e-patients. They’re the new generation of patients.

And the new generation of hypochonders.

Second slideshow: Medical communities online

  • I have an opinion and post it online
  • But others have their own opinions as well
  • It becomes hard to find information and we need places/sites where information is collected and selected by other experts and collegues.
  • How to find a collegue or to get answer for a medical question? By using telephone, Google or Facebook? Certainly not…
  • We need medical community sites
  • Examples: Tiromed.com, Sermo.com, Nature Network and many more.
  • Microblogging (Twitter and Friendfeed)
  • Advantages of medical communities, disadvantages

Take-home message:

Divide and share instead of conquer…

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3 Responses to “Week 5: The world of e-patients and medical communities”

  1. Medicine 2.0 Course Week 5: E-patients and medical communities « ScienceRoll Says:

    […] Medicine 2.0 Course Week 5: E-patients and medical communities November 3, 2008 Posted by Bertalan Meskó in Medicine, Medicine 2.0, Medicine 2.0 Course, Web 2.0. trackback This is the 6th week of my Medicine 2.0 university credit course and this week’s topic will be medicine in Second Life. But now I posted a few thoughts focusing on last week’s slideshows on the blog of the course. […]

  2. World Diabetes Day: A day of a diabetic vlogger « ScienceRoll Says:

    […] great encouragement to diabetic patients all over the world. Recently, she has made a video for my Medicine 2.0 credit course and now she posted a video for the World Diabetes […]

  3. Scott Says:

    Thanks for this..excellent video

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